Get it Together: How to Integrate Physical and Mental
Health Care for People
with Serious Mental Disorders
Executive Summary
This report examines model programs for improving integration and coordination
of behavioral health and primary health services for adults and children
with
serious mental disorders who rely on the public mental health system for their
care. It summarizes findings of a series of studies and offers recommendations
for policymakers.
There is an extensive body of literature and demonstration projects to improve
integration of mental health in primary care for individuals with mild to moderate
mental disorders. The Bazelon Center’s study fills a gap by focusing
primarily on integration of care for people with serious mental illnesses.
The problems stemming from a fragmented health care system are particularly
acute for this population. In a recovery-oriented mental health system, physical
health
care is as central to an individual’s service plan as housing, job training
or education.
Recently, the President’s New Freedom Commission on Mental
Health stressed the importance of a recovery-oriented public mental health
system with services
based on a single, comprehensive plan that focuses on all of a consumer’s
service needs. The Institute of Medicine has also called for the “coordination
of care across patient conditions, services and settings over time,” while
recognizing this as a major challenge. However, creating the necessary structures
and incentives for integrated care is not simple.
We examined several models,
from unified physical and behavioral health programs to improved collaborations
across separately located providers. To differentiate
between the models, we use the term “integration” when physical
and mental health care services are delivered to the individual in a unified
and
holistic manner and “coordination” when information is shared and
separate providers are linked through special initiatives or policies.
People
with serious mental disorders often have serious physical health care problems.
Numerous
studies over the last 30 years have found high rates of physical health-related
problems and death among individuals with serious mental illnesses.
In one
study, nearly half had at least one chronic illness severe enough to limit
daily functioning.
People with mental illnesses are also more likely to have multiple physical
disorders. A study in Massachusetts found that adults with a mental illness
were roughly
twice as likely to have multiple medical disorders as adults without a mental
illness and that those with both a mental illnesses and a substance abuse
disorder were the likeliest of all to have medical problems.
Many of these physical
health problems are very serious. A recent study of adults discharged from
psychiatric hospitals found 20% with chronic and serious
conditions
such as HIV infection, brain trauma, cerebral palsy and heart disease. As many
as 75% of individuals with schizophrenia have been found to have high rates
of serious physical illnesses, such as diabetes, respiratory, heart and/or
bowel
problems and high blood pressure. High rates were also seen for vision (93%),
hearing (78%), and dental (60%) problems.
In part due to a predisposition to
diabetes but also from the effects of atypical antipsychotic medications, which
exacerbate this predisposition, individuals
with schizophrenia have especially high rates of diabetes.
Cardiovascular diseases
are also very prevalent among people with mental illnesses. Again, psychiatric
medications exacerbate the problem because they are associated
with obesity and high triglyceride levels, known risk factors for cardiovascular
disease. Adults with serious mental illnesses are known to have poor nutrition,
high rates of smoking and a sedentary lifestyle—all factors that place
them at greater risk for serious physical disorders, including diabetes, cardiovascular
disease, stroke, arthritis and certain types of cancers.
While children with
serious mental disorders do not appear to have parallel high rates of physical
disorders, many adolescents engage in risky behavior,
such
as alcohol or drug use, smoking or unprotected sex. Further, the increased
use of psychiatric medications with this population may contribute to obesity
and
the risk of diabetes and cardiovascular disease.
Despite such extensive medical needs, adults with serious mental illnesses
often do not receive treatment. A review of 18 studies estimated that, on
average, 35% of individuals with serious mental disorders have at least one
undiagnosed
medical disorder. Among people with schizophrenia, fewer than 70% of those
with
co-occurring physical problems were currently receiving treatment for 10
of 12 physical health conditions studied. Preventive services are also lacking:
a study
of veterans with mental illnesses found lower rates of vaccinations and cancer
screenings.
The consequences are dire. Individuals with serious mental illnesses
living in the community have age-related mortality rates 2.4 times the rate
for the
general
population. The lifespan for men with schizophrenia is about 10 years shorter
than average—among women, nine years.
Clearly, regular primary care services
are needed to protect the health of people with serious mental illnesses. Integration
of that care with behavioral
health
services is particularly important because it produces better outcomes.
For example, a study involving 120 veterans with serious mental illnesses found
that those who received care at an integrated site were more likely to make
primary care visits and less than half as likely to have emergency visits.
Principal Barriers to Integrated Care
Historically, people with serious mental
illnesses have been treated as if mental illness were the sole defining factor
of their
health
and their
lives.
Separate health, mental health and substance abuse service delivery systems
and funding sources, differences among providers in practice orientation and
training, and various consumer concerns are just some of the barriers that
must be overcome to deliver effective integrated care. Despite widespread understanding
that fragmentation negatively affects quality of care and outcomes, a number
of stumbling blocks remain.
Patterns of financing create problems.
In the public sector, health, mental
health and substance abuse services are funded separately, reinforcing the
segregation of services and delivery systems.
This segregation is perpetuated in managed care arrangements in which physical
health and behavioral health care services are provided under separate contracts.
The payment system constrains efforts to improve integration since providers
generally are not reimbursed for time spent communicating with colleagues and
are discouraged by inadequate reimbursement for the longer office visits that
would uncover issues beyond the primary presenting disorder. In recent years,
resource pressures have led to primary care office visits typically no longer
than 13 to 16 minutes.
Cultural differences lead to isolation.
A long history of separation has left
providers unfamiliar with issues in the other’s field. While psychiatrists
may discount primary care physicians’ knowledge
of mental health issues, primary care physicians often see psychiatrists as
inaccessible, non-medical and uncommunicative. Medical school and residency
programs contribute to these views by emphasizing the biomedical, technical
aspects of care and not giving adequate weight to psychosocial factors. Already
somewhat skeptical about whether mental health diagnosis and treatment is evidence-based,
primary care physicians are likely to consider substance abuse treatment as
outside the mainstream, more the province of social services than of medicine.
Primary care providers generally communicate more easily with other specialists
than with behavioral health providers. Since behavioral health practitioners
often do not provide care in hospitals, they may be isolated from both primary
care and specialty physicians. Studies suggest that personal knowledge is the
most important factor in identifying a specialist, so the lack of regular contact
is a barrier to referrals and collegial interaction.
Differences in professional
style impede close working relationships. Primary care physicians often experience
frustration in attempts to work with mental
health providers, particularly with public mental health programs, because
they are unaccustomed to working with agencies and interdisciplinary teams.
They may become discouraged if they cannot reach a psychiatrist and are expected
to discuss a case with another mental health professional or case manager.
Cultural barriers are an even greater problem between primary care and substance
abuse providers. Some substance abuse treatment programs preclude the use of
medications, while physicians generally have a much more positive view of pharmacological
treatment. Substance abuse providers are often dismissive of physicians who
they believe ignore substance abuse issues. Even the integration of mental
health and substance abuse care is problematic due to cultural differences
among providers.
Training is key.
Most primary care physicians do not receive significant training
in psychiatry or practice guidelines that emphasize integration of mental health
and primary
care services. We found more than a dozen studies that examine the poor rate
of recognition of mental disorders in primary care settings, showing that half
to two thirds of diagnosable mental disorders go unrecognized.
Other barriers
that make primary care providers hesitant to serve people with mental illnesses
are concerns about their own skill in identifying mental disorders,
worries about time constraints and limited access to professional backup when
serious problems are uncovered. A study of more than 700 pediatricians found
that most lack confidence in their own diagnostic skills and knowledge of mental
health issues.
Similarly, mental health providers tend to overlook signs of
physical disorders, with consumers reporting that their health concerns are
often dismissed as
psychosomatic or the result of their mental illnesses. This problem is exemplified
in a study indicating that nearly half of women’s health problems were
overlooked by psychiatrists.
Generally, neither group receives training related
to collaborative practice arrangements, interagency systems or interdisciplinary
teams.
Needed services are often unavailable.
According to the President’s New
Freedom Commission on Mental Health, the public mental health system is “in
shambles,” with the capacity
to provide only a minimal level of care. As a result, most public systems only
accept individuals with the most serious mental disorders. Substance abuse
systems likewise limit eligibility to particular priority populations.
Primary
care providers are reluctant to refer patients if there are long waiting lists
for services and if they have been unable in the past to secure mental
health speciality services for their patients. When primary care providers
cannot make needed referrals and are not told why, they presume that effective
collaboration is not feasible.
Access to primary care is also an issue. Studies
consistently show that people with mental disorders are less likely to be treated
for physical conditions
and less likely to receive preventive care. Even when individuals have health
insurance, this lower level of service is seen, suggesting that multiple factors
influence the disparity.
Information-sharing is essential but difficult.
While behavioral health service
plans are long and focused on the broad array of issues that must be addressed,
primary care records are short summaries.
When sent a typical mental health record, primary care providers may be frustrated
by the difference in orientation and the time it takes them to find needed
information.
Information systems, too, are often different in mental health
and primary care offices. With electronic records, the software may be incompatible
or,
when records are kept on paper, reporting forms, if they exist, may not include
the information needed.
Confidentiality laws and practices for mental health
and substance abuse are more stringent than for physical health care. A study
of three Medicaid behavioral
health plans found that information-sharing between providers in different
systems is hindered by differing confidentiality rules. Before records can
be shared, individuals must sign a separate release authorizing their mental
health or substance abuse providers to furnish information to their primary
care physician. Some behavioral health providers simply do not ask for authorization
nor do they discuss the advantages of sharing information with others who are
involved in the consumer’s care.
Consumers have concerns.
Studies have consistently documented that adults with
serious mental illnesses face barriers in obtaining health care and seek
it less frequently than others.
Over half of individuals with mental illnesses reported at least one perceived
barrier to care (such as transportation problems), while only 19% of the
general population reported facing one or more of these barriers.
Consumers
may have difficulty understanding how to get services and how to follow treatment
instructions, or they may avoid medical care due
to fear.
Isolation, cognitive impairment, attentional difficulties or other behavioral
factors may play a role and make interactions with primary care providers
problematic. Some individuals may forego needed medical care because
of prior negative experiences
with providers.
Many mental health consumers are also concerned about
disclosing information about their mental illness or substance abuse problem
due to the potential
for discrimination and social isolation. Older adults often have an
even greater fear of stigma.
Service Delivery Models for Integrated Care
Although the barriers to effective integrated care for individuals with serious
mental disorders are many, it is encouraging that a number of piloted programs
have achieved some measure of success. This report examines four approaches:
-
The embedding of primary care providers within public mental health
programs;
-
Unified programs that offer mental health and physical health care
through one administrative entity;
-
Initiatives to improve collaboration between
independent, office-based primary care and public mental health;
and
-
Co-location of behavioral health providers in primary care offices.
The following sections
discuss the ability of the first three models to overcome the above-cited barriers
to integrated care for people with serious behavioral
disorders. The fourth, co-location, examined briefly in the full report, is
best used for integration of services to consumers with mild to moderate mental
illnesses, who are seen mostly in primary care settings.
Primary care embedded
in a mental health program
The embedding of primary care in a mental health
program ensures strong working linkages between primary care and mental health
providers and is particularly
appropriate for adults with serious mental illnesses, whose primary contact
with the health system is through their mental health provider. We studied
four examples.
These programs allow extra time in primary care visits for providers
to deal with the more complex medical issues presented by these individuals.
Many of
the programs are staffed with physician assistants and nurses, who typically
have more flexible schedules than physicians. Routine appointments may be 30
to 45 minutes. To address the lack of resources for integrated care, these
programs rely on both third-party reimbursements and specific funding to cover
the cost of the longer appointments and the time providers spend in collaboration.
Cultural barriers often evaporate in an embedded program. When providers are
co-located, daily interactions lead to more collegial work, higher quality
care and greater consumer satisfaction. Practitioners learn from each other
informally and their more formal training needs are met in planned professional-development
activities. In an embedded model, primary care providers develop a better understanding
of why patients fail to follow through on health care advice and develop more
effective strategies. One of the most striking findings from these case studies
is that many of the barriers to integration (particularly those that stem from
cultural differences or lack of provider training) are overcome without special
initiatives.
Information-sharing is greatly improved in embedded programs,
where the importance of an integrated medical record is recognized. Many of
the programs are also
developing electronic record systems. Consumers report greater comfort with
information-sharing among providers when the providers operate out of the same
program.
Improved access to health prevention and treatment occurs in these
programs. In addition to clinical services, support groups, health education
classes
and other activities are offered. Consumers are helped to develop the skills
and motivation to take an active role in managing their own health, such as
by diet and exercise, and by following treatment regimens. Embedded programs
have also developed initiatives to address the high prevalence of certain disorders,
such as diabetes, hypertension, tobacco abuse, asthma, obesity, foot problems,
HIV and dental problems.
To ensure consumers of access to primary care services
as part of their service plan, the mental health team must be responsible for
ensuring that consumers
access the primary care services on a regular basis.
Providers in embedded
programs report greater satisfaction and feel that integration has improved
access and quality. They note improved diagnosis and treatment
of previously unreported but significant illnesses and an increased number
of consumers who receive regular screening, health education and preventive
services. As a result, individuals in embedded programs are less likely to
use emergency rooms and crisis-oriented health services.
Consumers report more
comfort with primary care providers who work in a program for people with serious
mental disorders. They were enthusiastic about embedded
programs and about a “one-stop shopping” approach.
Embedded programs
visited were operating in either rehabilitation or day treatment programs.
There are significant advantages to incorporating primary care within
a rehabilitation program because of the program’s emphasis on recovery
and focus on self-management skills. In some areas, accessible primary care
services could be made available within an outpatient mental health clinic
program. One option is for mental health agencies is to ask a local community
health center to establish a satellite primary care clinic within the mental
health agency.
Unified primary care and mental health programs
Combining publicly funded primary
care and behavioral health into a unified program is the most seamless approach
of the models studied, integrating not
only delivery of care but also administration and financing. We studied three
sites, each providing a full range of behavioral health and primary care services,
using multiple providers who work as an integrated team. One is a combined
community health center and community mental health center. Others are not
single entities but collaborations across a number of agencies. Participating
agencies may include mental health, substance abuse, health, Medicaid, maternal/child
health, child welfare and juvenile justice.
One of the strengths of this approach is that it overcomes barriers regarding
time and resources for collaboration. Providers are paid through the agency
for time that is required for collaboration, including reimbursement for in-person
attendance at case-planning team meetings.
Unified arrangements are economically
efficient, offering opportunities for administrative savings and physical plant
efficiencies. Data from the Mental
Health Services Program for Youth in Massachusetts, for example, showed that
in the first year it reduced per member/per month costs by 18% over the estimated
capitation rate.
Overcoming financing barriers has been effective at Cherokee
Health Systems, a community mental health center and federally qualified community
health center
providing integrated services at 21 sites in Tennessee. Cherokee obtains reimbursement
from payers to cover its costs. It also can access special financing for rural
areas or underserved populations.
The other programs have special funding arrangements and receive support from
other sources, such as a medical school, the state or the county.
Cultural barriers
are overcome in the unified programs, as in the embedded programs, and for
similar reasons. In addition, in a unified model, integration
is an agency-wide effort involving both clinical and administrative staff.
As a result, all staff become sensitive to consumer issues, and programs have
fewer worries about inexperienced personnel who lack the understanding and
patience to work with this population.
Information-sharing is addressed in
unified programs, which generally work with an integrated medical record containing
physical health records, mental
health records and prescription drug information. With single records, paper
or electronic, providers do not have to duplicate health histories or depend
on patient recall to learn about treatment plans. Individuals with serious
mental illnesses also are less concerned about the sharing of information with
their primary care provider in a unified program where staff clearly work together.
Access,
continuity and quality of care improve in these models and the advantages are
similar to those described for the embedded primary care model. For consumers,
these programs provide a single point of access whether they present with a
physical or a mental health problem. Consumers find the “no wrong door” approach
to all of health care more friendly, less stigmatizing and easier to access.
Unified programs ease concerns about stigma because the facility is not singled
out as a mental health site.
Policy for an integrated approach
Making health care more accessible to adults
in the public mental health system should be a high priority for policymakers.
Whether primary care is embedded
in a mental health program or services are provided in a unified mental health
and primary care program, these models have produced excellent results and
reduced health disparities among people with serious mental illnesses. Outcome
and consumer-satisfaction data, as well as anecdotal reports, support the finding
that these programs are very effective in meeting the needs of individuals
with serious mental illnesses.
For each model, there are policy issues to be
resolved regarding service delivery, financing, monitoring and quality assurance.
Integration policy must focus
first on ensuring that clinical integration occurs, and then the structures
must be designed and financing mechanisms put in place to support it.
In developing
policy to encourage either embedded or unified programs, policy approaches
might include:
-
Providing start-up funds for establishment of embedded or unified
programs to cover clinical and administrative needs. These monies may be
provided by
the public mental health authority or sought from foundations, businesses,
government and other health care agencies. Funded agencies must ensure
that individuals have a consistent and regular source of primary care.
-
Stipulating
the requirements that mental health agencies furnishing on-site primary
care must meet, related to delivery of care (health assessments, prevention
and treatment), development of a unified plan of care, information-sharing
and case management services.
-
Ensuring that reimbursement rates reflect the
cost of providing services and the time spent on care coordination for
individuals with serious mental
illnesses and co-occurring physical disorders. In a fee-for-service arrangement,
payers should develop billing codes that allow providers to be compensated
for longer office visits and for collaboration. In managed care, payers
should provide higher capitation rates for individuals with serious mental
disorders
and co-occurring health conditions. Increased costs associated with this
risk adjustment will be offset by reduced use of hospital or other costly
crisis
services.
-
Placing the responsibility for primary care services to individuals
with serious mental illnesses clearly on one entity. Medicaid managed
care payments
for primary care should be made to unified or embedded programs. To accomplish
this, managed health care plans should be required to credential and
include in their network providers working in a unified or embedded program.
Alternatively,
individuals with serious mental disorders could be allowed to opt out
of their managed health plan for primary care and their capitation payment
could
follow
them to either a mental health carve-out plan or (in a fee-for-service
system) to a mental health provider agency.
Creation of a unified program requires
planning and collaboration between leaders of previously separate entities.
Merging of a community health center and a
community mental health center is a model that states may want to explore,
particularly for underserved rural areas. If the resulting unified agency is
led by mental health professionals, it will be stronger on mental health care
delivery. However, if it is led by a primary care agency, there may be a need
for requirements to assure effective behavioral health care and provision of
a full range of mental health services, including psychiatric rehabilitation.
Improving collaboration between separate providers
We studied four state Medicaid
systems addressing coordination of primary care and behavioral health for people
with serious mental disorders, in Massachusetts,
Michigan, Oregon and Oklahoma. Strategies used to improve collaboration include
special targeted programs, financial incentives, managed care contract requirements,
and provider education and training.
Integration of care is difficult when providers practice separately and have
separate administrative structures, information systems and funding sources.
This model requires numerous adjustments and special efforts to overcome each
of the barriers to collaboration. On the other hand, this approach causes the
least disruption to traditional practice.
Lack of time for collaboration is
an issue in the four systems reviewed. Although each provides a higher capitation
rate for people who are eligible for Medicaid
as a result of disability, few systems increase capitation for individuals
with the most severe mental illnesses or with co-occurring physical disorders.
While adjustments to capitation and reimbursement rates have helped, they have
not fully addressed the time and funding constraints that deter meaningful
collaboration.
Compensating for lack of financial compensation, some of these
projects provide mental health backup to primary care providers, such as mental
health consult
lines or mobile mental health assessment teams to screen primary care patients
in a psychiatric emergency.
To overcome cultural differences, some mental health
agencies reach out to offer opportunities for interaction between their mental
health practitioners
and primary care practitioners. These can be formal or informal opportunities
to forge better working relationships.
Information flow is more difficult between
separate providers. A common complaint in the site visits, from both behavioral
health and primary care providers,
was lack of feedback after making a referral. Strategies to address this include
significant use of case managers or having a case manager or psychiatric nurse
accompany the consumer on a primary care appointment so that key information
can be shared with clinical staff at the mental health program.
In fact, the
most common strategy to overcome barriers to coordination between separately
located providers is to give case managers this responsibility.
In the four states studied, managed care contracts require health plans to
offer case management for complex and high-cost cases. Case managers for physical
health care may be registered nurses and often work closely with mental health
system case managers. In one state, both work out of the same office, conduct
home visits together and coordinate closely on individuals’ needs. Some
states have varying levels of case management to meet the varying needs of
consumers who need intensive services, short-term support or targeted, one-time
outreach.
Information-sharing could be improved if health plans used quality
assurance mechanisms to address coordination. However, where this occurs the
results
show that information-sharing still does not always occur, suggesting that
incentives may be needed. The accuracy of pharmacy information can be improved
if providers develop a system to update each other regularly on new prescriptions
rather than relying on patients’ self-report.
Privacy laws and practices
are also a greater barrier between separately located offices, as separate
consent is required for the sharing of information. Some
consumers appear reluctant to agree due to concerns about how their independent
primary care provider might then view them.
Access to mental health or primary
care services can be improved when programs provide transportation. Some mental
health programs have staff who accompany
members to primary care appointments to cut down on the number of missed appointments.
Some states require their Medicaid health plans to do outreach to those who
miss scheduled follow-up.
To overcome training deficits, several systems had developed information
materials and training sessions for primary care providers to improve their
management
of individuals with mental health care needs.
Despite these efforts, consumers
in systems where behavioral and physical health care is furnished separately
report little collaboration. They also continue
to have concerns about providers’ sharing information about them, particularly
if they have not had a chance to review it first.
Although efforts to improve
collaboration and bridge the cultural divide among separate providers have
been somewhat successful, it is apparent that many
problems remain. Moreover, these initiatives had to engage in several layers
of effort to overcome barriers that would fall by themselves if the providers
were working together as a team out of one location.
Policy for a collaborative approach
Various policy strategies can encourage
greater coordination between different sites, including mandates for mental
health provider agencies to more comprehensively
address their consumers’ physical health care needs and to demonstrate
strong linkages with local primary care providers. A mix of incentives and
mandates laid out in this report could bring more attention to collaborative
care.
-
Initiatives to improve communication and understanding between the
two fields can be built into contracts for public care. Case managers
will play
a critical
role in linking consumers to all providers of their care. Information-system
problems could be addressed by facilitating the adoption of electronic
records and developing standard, simplified forms for sharing information
with primary
care providers.
-
Consumers can be encouraged to consent to information-sharing,
helped to appreciate its importance and allowed to participate in decisions
about
what
will be shared.
-
Access will be improved if primary care providers receive
information on local mental health resources and how to access care from
the public
mental
health system. Consumers might be provided transportation passes
or accompanied on visits to make it easier for them to see their primary
care
provider.
-
Consultations should be readily available to ensure that primary
care providers have sufficient behavioral health support. Psychiatric
phone
consult lines
and mobile mental health teams are two ways to provide backup
when prompt responses are needed.
-
Funding strategies include the use
of performance measures, coupled with incentives, for health plans to
ensure greater collaboration
with behavioral
health providers or carve-out plans. In both fee-for-service
and managed care plans, resources should be provided for extra time
to meet the
primary care
needs of individuals with serious mental disorders and for
the time to engage in collaboration across systems.
-
Agencies can provide educational
materials and organize continuing education programs to help primary
care providers acquire the skills
to work with
individuals with serious behavioral health disorders. Also,
mental health provider agencies
should be encouraged to meet with local primary care providers
who serve significant numbers of consumers with mental illnesses
to discuss
problems
of collaboration
and work out solutions and new approaches.
Other Policy Recommendations
In addition to adopting policies that foster a
particular model of integrated or coordinated care, states may need to adopt
broader policies,
affecting the
public mental health and primary care systems more widely.
Monitoring, quality
assurance, evaluation
Current Medicaid contracting language to improve integration
of care is ineffective, since states generally have only broad contract provisions
with no details
on how this is to be achieved. States should make more use of incentives
to improve performance.
Since effective monitoring depends on good data, health and behavioral
health plans and fee-for-service providers should be required to collect
and report
data, such as:
-
Health-status indicators for mental health consumers,
including blood glucose levels for diabetics and blood pressure levels
for hypertensives,
number
who receive appropriate preventive health care screenings and
health education, and number who adopt changes related to exercise, smoking,
weight and nutrition;
-
Use of emergency rooms for physical health care issues (pre- and post-integration);
-
Admissions to psychiatric facilities and average lengths of stay (pre-
and post-integration);
-
Other quality assurance measures, e.g., chart reviews;
-
Number of charts
with signed consent forms and indications that communication
between the mental health and the primary care provider has occurred;
-
Indications in charts
that various prescribers have exchanged pertinent information
on medications; and
-
Consumer and provider satisfaction surveys.
After three years of operation,
states may also wish to evaluate their new initiatives, contracting for an
independent cost-benefit
analysis
of data
over a five-year period.
Training
Various strategies can help practitioners improve care integration,
such as:
-
Feedback to practitioners about how their care management measures
up to their peers’ and to practice guidelines through the use of
provider profiles;
-
Training programs and behavioral health support for providers who
care for individuals with significant behavioral health and medical care
needs; and
-
Conferences and educational programs with incentives to participate,
such as continuing education credits.
Software development
Software development has been costly and time-consuming
for the programs we studied. States may wish to consider either developing
model software to handle
integrated records for local agencies to use or providing grants for agencies
to develop their own software.
Privacy
States should ensure that all providers engaged in integrated care
understand the privacy requirements of the federal Health Insurance Portability
and Accountability
Act (HIPAA) and state privacy laws. Among other provisions, HIPAA requires
that mental health provider notes not be shared without a specific and separate
consent from the consumer, that individuals have access to their own medical
record if they wish and that record-sharing is documented in the individual’s
record.
Consumer issues
States should support initiatives to help consumers take an
active role in managing their chronic medical and behavioral health conditions.
Educational
efforts should include information on wellness. Mental health programs
serving meals should emphasize good nutrition. Health education classes and
support
groups can help consumers learn to take an active role in managing their
health.
State agency communications
Communication and collaboration between state Medicaid agencies, health
and mental health authorities and substance abuse agencies is essential.
These
agencies should engage consumers, families and other stakeholders in
discussions of how to improve integration of care.
Federal Government Policies
The report makes several recommendations on how the federal government can
also play a role in promoting integration of care. For example, changes are
needed to current federal Medicaid policy that does not allow payment for more
than one office visit on the same day.
Other federal agencies could develop
quality of care and performance measures related to integration, fund demonstration
projects of embedded and unified
programs and provide technical assistance to the field. Federal resources
for improving provider and system infrastructure would be valuable, including
grants
for workforce development initiatives to ease provider shortages and for
development of information systems capable of integrating physical and behavioral
health
information.
Conclusion
Integration of physical health care with behavioral health care for adults
and children who have serious mental disorders is extremely important to consumers
and a priority policy of the Bazelon Center. Until now, discussions of integration
have tended to focus on the need for behavioral health support within primary
care practices, principally to address mild or moderate mental disorders such
as depression. Little has been written about how to integrate care for people
with serious mental disorders.
Any recovery-oriented public mental health system
must develop a consumer-driven vision of integrated care. Therefore, regardless
of the specific approach considered,
it is extremely important to engage consumers, families and other advocates
in the development of new policies.
The site visits conducted for this report
are encouraging. They indicate that embedding primary care within a mental
health program or unifying mental
health
and health care delivery agencies yields by far the best integration of
care for individuals using public mental health services. Once primary care
and
behavioral health providers are working in close proximity, thorny problems
of communication and cultural differences dissolve and extensive policy
micro-management is unnecessary. However, some consumers may still prefer to
continue seeing
a separately located primary care provider, and for them greater collaboration
across separate providers is needed.
It is time for policymakers to ensure
that people with serious mental disorders fit into a unified health care
system that offers parity between health
and mental health care. Integration of primary care and mental health
services holds the promise of moving behavioral health care delivery closer
to the
mainstream. This study confirms that where there is a will, there are
many ways to approach
this problem, with a good potential for success.
Models exist. Needed
now is the political will to get it together and action to make the necessary
changes.
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