Brief on Budget Neutrality*: In
this amicus brief, state commissioners, directors, and administrators
from eleven states argue that the moderate and temporary costs associated
with desegregation do not fundamentally alter a mental health system
and, thus, are not an adequate reason to exempt states from the Americans
with Disabilities Act's community integration mandate. This is a PDF
file; you will need the
free Acrobat Reader to view it. (12/18/02)
L.C. and E.W. v. Olmstead case was brought in 1995 by the Atlanta
Legal Aid Society on behalf of Lois Curtis and Elaine Wilson, women with
mental retardation and psychiatric conditions who were patients in a
state psychiatric
hospital.
The treating professionals in the hospital all agreed that they were
appropriate
for discharge into community programs, but slots were not made available.
While the case worked its way through the courts, both women were placed
in the community, where they have been doing very well. The case continued
because the situation could arise again. Final
settlement was reached on July 11, 2000.
The state of Georgia asked the Supreme Court to decide "[w]hether the
public services portion of the federal Americans with Disabilities Act
compels the state to provide treatment and habilitation for mentally disabled
persons in a community placement, when appropriate treatment and habilitation
can also be provided to them in a State mental institution."
The case turned on the meaning of a regulation that the U.S. Department
of Justice adopted to enforce Title II of the ADA, stating that:
A public entity shall administer services, programs, and activities
in the most integrated setting appropriate to the needs of qualified
individuals
with disabilities. 28 C.F.R.§ 35.130(d).
The Department of Justice has interpreted this regulation as requiring
the community placement of institutional residents when the state's own
treating professionals have recommended such placement.
In allowing the women's right to community placement, the 11th Circuit
set a very high standard for a holding of "fundamental alteration" while
also giving substantial deference to the Justice Department's analysis.
It held that "by definition, where, as here, the State confines an individual
with a disability in an institutional setting when a community placement
is appropriate, the State has violated the core principle underlying the
ADA's integration mandate."
The circuit court made two arguments that, having been upheld, are useful
to advocates. First, it specifically rejected the state's claim that the
ADA was limited to discrimination between disabled and non-disabled people
and that institutional services were provided only to disabled individuals.
The court noted that the ADA specifically recognizes that discrimination
existed in insitutionalization and that this finding would have been superfluous
under the state's analysis. Second, it recognized that, during the course
of litigation, there may be times when a person can be treated in the
community and others when institutionalization is necessary. However,
where the evidence shows that all experts agree that at a given time a
patient could be served in the community, then the ADA mandates such a
placement, unless it would be a fundamental alteration in the state's
provision of services.
Finally, the circuit court remanded L.C.'s case for determination
whether providing the community-based services would be a fundamental
alteration in the state's services. The court set a very high standard,
holding that "unless the State can prove that requiring it to make these
additional expenditures would be so unreasonable given the demands of
the State's mental health budget that it would fundamentally alter the
service it provides, the ADA requires the state to make these additional
expenditures." The court set forth three non-exhaustive factors for the
district court to consider: 1) the reasonableness of the expenditures
in light of the entire budget for mental health, 2) whether it would be
unreasonable to require the state to expand its waiver program to minimize
the financial burden, and 3) whether any difference in the cost of providing
community-based services will lessen the state's burden. This was addressed
in detail by the Supreme Court.
The Bazelon Center, which organized an amicus brief in the 11th Circuit
written pro bono by the law firm of Howrey & Simon, mobilized organizations
to file Supreme Court briefs as friends of the court, to assure the justices
that states are already committed to providing services in the community
instead of in institutional settings, and that they can comply with the
integration mandate at a reasonable cost.
Twenty-two states filed a brief urging the Supreme Court to accept the
case for review: AL, CA, CO, DE, FL, HI, LA, MD, MI, MS, MT, NE, NH, NV,
PA, SC, SD, TN TX, UT, WY, WV. After the Court accepted the case, all
of these and four additional states signed on to an amicus brief making
the argument against federal court interference in states' operation of
mental health and developmental disability systems. However, 15 of the original 22 states withdrew from the group, announcing that
they would not oppose the 11th Circuit ruling. The 15 are: Alabama, California,
Delaware, Florida (the organizer of the earlier brief), Louisiana, Maryland,
Michigan, Mississippi, Nebraska, New Hampshire, Pennsylvania, South Carolina,
South Dakota, Utah and West Virginia. And all four new states that had
joined in support of Georgia's positionIndiana, Massachusetts, Minnesota
and Washingtonlater wrote to the Court to withdraw.
More on the Decision
In a 6-3 opinion authored by Justice Ruth Bader Ginsburg, the court affirmed
a ruling by the United States Court of Appeals for the Eleventh Circuit
that unjustified isolation of individuals with disabilities is properly
regarded as discrimination based on disability. The court held that unjustified
segregation in institutions is discrimination not only because it perpetuates
unwarranted assumptions that people with disabilities are incapable or
unworthy of participating in community life, but also because confinement
in an institution severely curtails everyday life activities, such as
family relations, social contacts, work, educational advancement and cultural
enrichment.
Nonetheless, the Supreme Court held, the states' need to maintain a range
of facilities for the care and treatment of individuals with diverse mental
disabilities must be recognized. In determining whether a state can successfully
assert a "fundamental alteration" defense (i.e., claim that providing
community-based services to an individual would fundamentally alter the
state's service-delivery system), courts must consider not only the cost
of providing community-based care to the litigants, but also the state's
obligation to mete out services to others with mental disabilities in
an equitable manner. If the state can show that immediate relief for the
plaintiffs would be inequitable "given the responsibility the state has
undertaken for the care and treatment of a large and diverse population
of persons with mental disabilities," it will meet the fundamental alteration
defense. For example, Justice Ginsberg wrote, if the state demonstrates
that it has a "comprehensive, effectively working plan for placing qualified
persons with mental disabilities in less restrictive settings, and a waiting
list that move[s] at a reasonable pace not controlled by the State's endeavors
to keep its institutions fully populated," an individual cannot skip to
the top of the waiting list by filing a lawsuit to obtain community services;
such a move would not be a reasonable modification.
Finally, the court held that a state may generally rely on the "reasonable
assessments of its own professionals" in determining whether a community-based
placement is appropriate. Additionally, the ADA does not require that
community-based treatment be imposedonn individuals who oppose it.
The Olmstead decision should encourage states to begin planning
implementation strategies to comply with the ADA's integration
mandate, spelled out in regulations requiring that services be provided
"in the most integrated setting appropriate to the needs" of people with
mental or physical disabilities. All states have already begun moving
in the direction of providing more mental health services in community-based
settings. Nonetheless, to comply with the integration mandate, state mental
health officials will need to take significant steps to move institutionalized
people more quickly into more integrated settings.
The court heard the Georgia case on April 21, 1999. The suit had been
brought by two women with both mental retardation and psychiatric conditions
who were patients in a state hospital. Their treating professionals agreed
that the women should be served in community programs, but no slots were
available for them. Supporting Georgia's appeal to the Supreme Court,
some states argued that, while "virtually any person can safely and appropriately
be served in his or her home (or in the most integrated community setting),"
the cost of doing so would be unduly burdensome.
Under Court Order
paper with policy recommendations and financing
strategies to help states avoid an undue burden from implementation
of the Supreme Court's decision. Lists an array of service options
that, when properly configured, can supplant institutional care and
promote
community membership. HTML format, or PDF.